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Genetic and Acquired Disorders
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Genetic and Acquired Disorders
Current Topics and Interventions for Educators

Edited by:
  • Paul C. McCabe - Certified School Psychologist, New York, Brooklyn College and the Graduate School, City University of New York
  • Steven R. Shaw - McGill University, Canada


March 2014 | 192 pages | Corwin
Educators often face the pressure to address children's medical needs within the school setting, but sometimes find themselves having to make difficult decisions without adequate training, support, or information about important pediatric issues. When faced with a medical question, many may turn to the Internet where information is sometimes reliable, sometimes not.

This concise and well-researched investigation into genetic and acquired health issues provides credibility and verifiability of data and establishes a foundation of confidence for any educator who must make policy, differentiate instruction, provide educational accommodations, offer special education services, collaborate with families, and work with the community to serve to children's medical, physical, and psychological needs.

Written for school psychologists, counsellors, administrators, and teachers, this highly practical and easy-to-understand reference describes genetic, chromosomal, and acquired disorders and discusses behavioural issues that may manifest themselves in classrooms as well as treatment options and intervention strategies. Readers will find:

- A section on chromosomal, genetic, and metabolic disorders covering topics such as phenylketonuria, the genetics of autism, the biology of shyness, and families of children with genetic disorders

- A section on acquired disorders with chapters on prenatal alcohol exposure, prenatal exposure to antidepressants, celiac disease, maternal post-partum depression and behaviour problems, asthma and quality of life, food allergies in the classroom, and diabetes.

Each chapter includes a case study, parent handouts, and a literature review based on the latest and best scientific research.

 
Preface
 
Acknowledgments
 
Part I. Advances in Health Care and Coping with Loss in Schools
Paul C. McCabe, Steven R. Shaw
1. Advances in Health Care and Medical Science: Presenting New Challenges for Schools
Advances in Medical Science

 
Increased Survival Rates

 
Greater Specificity of Medical Diagnosis and Treatment

 
Increased Emphasis on Outpatient Care

 
Changing Role of Schools

 
Increase in Pharmacological Interventions

 
Multidisciplinary Approach

 
References

 
Steven R. Shaw, Tiffany Chiu, Khing Su Lin
2. Grief and Bereavement: Roles for Educators
Introduction

 
Background

 
Implications for Educators

 
How to Tell Students about a Death

 
Notification and Announcement Procedures

 
Parent Notification

 
Determine the Degree of Trauma

 
Concerns about Death due to Suicide

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-Grief and Bereveament in the Schools

 
 
Part II. Chromosomal, Genetic, and Metabolic Disorders
Shohreh M. Rezazadeh, Steven R. Shaw
3. Rare Chromosomal Disorders
Introduction

 
Background

 
Genetics Evaluation

 
Chromosomal Abnormalities

 
Potential for Intervention

 
Future Work

 
Implications for Educators

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-Children with Rare Chromosomal Disorders

 
Paul C. McCabe, Lindsay Glasser
4. Phenylketonuria (PKU): Implications for Educators and Schools
Introduction

 
Background

 
Prevalence, Symptoms and Treatment

 
Cognitive and Neurological Effects

 
Executive dysfunction

 
Maternal Phenylketonuria

 
Timing and Degree of Exposure

 
Implications for Educators

 
Dietary Compliance

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-Phenylketonuria (PKU)

 
Sarah Glaser, Tia Ouimet
5. Genetics of Autism: Theories, Findings, and Implications
Introduction

 
Background

 
Knowing Which Families Are At Risk

 
Techniques to Identify Genetic Contributions

 
Known Genetic Causes

 
X-linked genes

 
Chromosomal Duplications

 
Chromosomal Deletions

 
Candidate Genes

 
Multiple Gene Complications and Unknowns

 
Possible Environmental Causes

 
The Role of Genetic Counseling and Testing

 
Implications for Educators

 
Home- and School-based Treatment and Interventions

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-The Genetics of Autism

 
Paul C. McCabe, Sarah Groark, Brian Dalpiaz
6. The Biology of Shyness
Introduction

 
Background

 
The Role of the Amygdala

 
Amygdala and Cortisol Levels: The HPA System

 
Psychological and Immune Correlates of HPA Activation

 
Implications for Educators

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-The Shyness in Children

 
Jennifer E. Bruce, Sara Quirke, Steven R. Shaw
7. Families of Children with Genetic Disorders
Introduction

 
Background

 
Asking Questions of Professionals

 
Managing Emotional Trauma

 
Stresses Faced by Families of Children with Genetic Disorders

 
Mothers of Children with Genetic Disorders

 
Fathers of Children with Genetic Disorders

 
Marital Stress in Families of Children with Genetic Disabilities

 
Siblings of Children with Genetic Disabilities

 
Increased Responsibilities of Siblings

 
Strengths in Families of Children with Genetic Disorders

 
Family Resilience

 
Positive Changes in Sibling Development

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-Helping Families with a Child with a Disability

 
 
Part III. Acquired Disorders of Childhood
Erica J. Deming, Paul C. McCabe
8. Prenatal Alcohol Exposure: Biological and Behavioral Outcomes
Introduction

 
Background

 
Neuroanatomical Effects of Prenatal Alcohol Exposure

 
Alcohol’s Effect on the Neocortex, Hippocampus, Cerebellum, and Neurotransmission

 
Neocortex

 
Hippocampus

 
Cerebellum

 
Neuronal level

 
Typical Anatomical Features of Children with Fetal Alcohol Exposure

 
Neurobehavioral Effects of Prenatal Alcohol Exposure

 
Implications for Educators

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-Effects of Prenatal Alcohol Exposure on Children

 
Paul C. McCabe, Caryn R. Depinna
9. Prenatal Exposure to Antidepressants
Introduction

 
Background

 
Types of Antidepressants

 
Selective Serotonin Reuptake Inhibitors (SSRIs)

 
Tricyclic Antidepressants (TCAs)

 
Monoamine Oxidase Inhibitors (MAOIs)

 
Untreated Depression

 
Conclusion

 
Implications for Educators

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-Information about Prenatal Exposure to Antidepressants

 
Jessica B. Edwards, Jessica blom-Hoffman, Debra L. Franko
10. Celiac Disease and Youth: Implications for Educators and Allied Professionals
Introduction

 
Background

 
Prevalence

 
Symptoms

 
Diagnosis

 
Treatment: The Gluten-Free Diet

 
Issues in the Treatment of Celiac Disease

 
Complications and Consequences of Untreated Celiac Disease

 
Dietary Adherence

 
Barriers to Dietary Adherence

 
Co-morbidity in CD

 
Implications for Educators

 
Strategies to Support Students with CD

 
Support the child with CD

 
Support the adults

 
Dietary adherence

 
Managing pain

 
Toileting needs

 
School absenteeism

 
Psychological treatment and evaluation

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-Celiac Disease: Helpful Hints for Educators

 
Denielle Parente, Paul McCabe
11. Post-partum Depression and its Relation to Behavior Problems in Children
Introduction

 
Background

 
Maternal Depression and Childhood ADHD

 
Child-Family Dynamics

 
Implications for Educators

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-Identifying and Treating Post-partum Depression

 
Adrienne Garro
12. Pediatric Responses to Asthma: An Overview for Educators
Introduction

 
Background

 
Experience of Symptoms

 
Impact on Student Functioning

 
Psychosocial Implications

 
Implications for Educators

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-Pediatric Responses to Asthma

 
Doris Paez, Gilliam W. Thomas
13. Food Allergies and Intolerances: What Educators Need to Know
Introduction

 
Background

 
What is a Food Allergy?

 
How Can an Allergy Cause Death?

 
How Do Food Allergies Develop?

 
Does Food Allergy Management Differ by Developmental Stage?

 
What Social-emotional or Behavioral Issues are Associated with Food Allergies?

 
What is the Status of Research on Causes and Treatments?

 
Implications for Educators

 
Create a Core Team

 
Food Allergy Emergency Plan

 
Storing of Medications

 
Label Literacy

 
Empowering Children with Food Allergies and their Peers

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout- Successfuly Managing Food Allergies in Childhood

 
Sarah A. B. Wilson, W. Mark Posey, Elizabeth M. Schnieder
14. Developmental Effects of Type 1 Diabetes
Introduction

 
Background

 
Acute Effects

 
Long-Term Effects

 
Physical Effects

 
Cognitive Effects

 
Academic Achievement

 
Social-Emotional Functioning

 
Implications for Educators

 
Educational Strategies

 
Discussion Questions

 
Research Summary

 
Handout-General Information about Type 1 Diabetes

 
 
Appendix
 
Glossary
 
References
 
Index

"These resources are the answer to the challenge of keeping pace with the evolving field of student support in schools."

Katy Olweiler, Counselor
Lakeside School, Seattle, WA

“This book is a unique and thoughtful volume that provides up-to-date material on diverse disorders in school-age children. Written with the busy educator in mind, the chapters are full of useful information regarding disease impact on educational outcomes, effective classroom interventions, and the current state of research. Discussion questions and handouts are presented with each chapter. I heartily recommend this book for teachers and educational support staff.”

LeAdelle Phelps, Professor
University at Buffalo, SUNY

"Covers genetic, chromosomal, and metabolic disorders; prenatal exposure to alcohol and antidepressants; and such problems as asthma, food allergies, diabetes, and grief and bereavement. These are some of the issues increasingly faced by school personnel every day. Each topic is treated in the same authoritative, accessible style found throughout the three volumes of this set."

John E. Desrochers, Editor, Communique
School Psychologist, Westport Public Schools, CT

Paul C. McCabe

Paul C. McCabe, NCSP, is an associate professor of school psychology in the School Psychologist Graduate Program at Brooklyn College of the City University of New York. McCabe is a New York State certified school psychologist, New York State licensed psychologist, and a Nationally Certified School Psychologist (NCSP). He serves on the editorial boards of several publications in school psychology and developmental psychology, and has consulted at state and national levels on issues of early childhood assessment and best practices, pediatric issues in schools, and training in school psychology. McCabe conducts and publishes research in early... More About Author

Steven R. Shaw

Steven R. Shaw, NCSP, is an assistant professor in the Department of Educational and Counselling Psychology at McGill University in Montreal, Quebec. He has been a school psychologist since 1988 with clinical and administrative experience in schools, hospitals, and independent practice. He has conducted workshops and consulted with educational policy makers to address the needs of children with borderline intellectual functioning in the US, Canada, Pakistan, Moldova, Poland, India, and Egypt. Shaw conducts and publishes research in behavior and language development in children with rare genetic disorders; resilience factors for children... More About Author

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ISBN: 9781412968720
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